It’s tune-up time again!! A “tune-up,” for those of you who aren’t in the know, is when the IV antibiotics have to come around to kick some ass. Sadly, bacteria can be stubborn. On the flip side of things, stubborn bacteria are...
Read MoreThanks to Elizabeth Gaccione for starting up #SingForCF benefiting the Boomer Esiason Foundation and the fight against cystic fibrosis! Since God made America free, I’m challenging 5 people instead of 3 to record a...
Read MoreSo, the other day I coughed up some blood. It’s pretty awesome when that happens. It’s also a pretty great party trick. “Hey, want to see what I can do?” If you’ve never had the pleasure of trying it out, let me take you through...
Read MoreWhat’s in it for us? Why do we live this life? Why do we do it, and maybe more importantly, how do we do it? The complexities in the answers to these questions could certainly fill the pages of an entire book, but since this is...
Read MoreI got a pretty interesting email (not saying that every email I get isn’t interesting!!) from Nicole, 28 with CF, the other day. It was somewhat of a response to my last Ask Gunnar blog...
Read MoreThis is the final episode of the Own Your Feeding Tube video podcast series. Here, you will see how the feeding tube has helped me immensely over the past 4 years. I have gained about 30 pounds, and to be honest with you, it has...
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**Please be advised: do not consider anything in this blog official medical advice. Medical advice...
Read MoreThe fourth episode of the Own Your Feeding Tube video podcast series discusses some of the social questions that tube feeders, or potential tube feeders, may have when it comes to a new feeding tube. Obviously, it’s a pretty...
Read MoreThis blog post touches on the invisible disease side of things. I know I went pretty deeply into that with my little story about almost getting tazed on an airplane ride from Boston to New York...
Read MoreIn the third episode of the Own Your Feeding Tube video podcast series, you will see how I have been able to maintain my physically active lifestyle. Prior to getting my feeding tube placed, I had a fear that my life would...
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**Please be advised: do not consider anything in this blog official medical advice. Medical advice...
Read MoreThe second episode of the Own Your Feeding Tube video podcast series will show you how I have had to make a few lifestyle changes after I had my feeding tube placed. I agree, it can seem like a lot of work and even a little...
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